Our Mission Statement:
To advance the awareness and treatment of Christianson Syndrome through education and information, research, advocacy and support for individuals with Christianson Syndrome, their families, and other concerned parties.
Why was CSA created? The Christianson Syndrome Association is a non-profit organization founded by Debbie Nash and her family in August 2011 in honor of her son, Andrew. Andrew was diagnosed with Christianson Syndrome in August of 2010. Soon after receiving the diagnosis, the Nash family realized how very little was known about this newly found genetic disorder. From that point forward, it has been the goal of Debbie and her family to support the research into the cause and treatment for this disorder as well as raise awareness both nationally and internationally. Once diagnosed families need to be able to talk and network with other families to know that they are not alone. CSA was born out of Debbie’s desire to reach other families whose children are affected by CS and to unite them together as one family with the goal of raising awareness and to ultimately find a treatment to help our boys.
Christianson Syndrome Association
15201 Mason Road Ste 1000 #173
Cypress, TX 77433
christiansonsyndromeassn@yahoo.com
281-723-5989