Welcome Home to CSA

Thank you to the families, researchers and scientists that helped make The 2nd International Basic Science and Clinical Conference on Christianson Syndrome so SPECIAL!!

Our Mission Statement:
To advance the awareness and treatment of Christianson Syndrome through education and information, research, advocacy and support for individuals with Christianson Syndrome, their families, and other concerned parties.

The Christianson Syndrome Association (CSA) was founded in 2011 by Debbie Nash and her family in honor of her son, Andrew, who was diagnosed with Christianson Syndrome in 2010. What began as one mother’s tribute has grown into a welcoming home for families affected by Christianson Syndrome worldwide.

CSA brings together families, caregivers, advocates, and scientists—uniting them through shared understanding, strength, and hope. Together, we work to raise awareness, deepen understanding, and improve quality of life, with the shared dream of one day finding a treatment. At CSA, no family walks this journey alone—we are stronger together. WELCOME HOME TO CSA!

This Facebook page is not run by CSA. It was started by parents of boys diagnosed with CS and is a great resource for those who desire community.

Recent Posts

Webinar

May 2026 Webinar Update

Thank you for attending our webinar last week! It was great to see so many of you. We truly appreciate the opportunity to come together, share our research, and hear what is on your mind. If you were unable to attend, you can watch the webinar here: https://youtu.be/If1Btpetj1U. Please feel free to share the link with…
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13th Annual Loop for Luke

Saturday April 25th, 2026Arrive 2PM with Departure at 2:15PM The Wright’s House8671 Open Meadow WayColumbia, MD 21045 Please join the Wright Family for either a 9 mile bike loop to Lake Elkhorn or a 2.5 mile walk or bike loop to Jackson Pond. Afterwards we’ll enjoy snacks and fellowship in our backyard. Please bring your…
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Webinar

March 2025 Webinar Update

It was wonderful to see so many of you last Friday at our CS webinar! Many thanks to all who attended, it was a great opportunity to come together, to share the research being done here at Brown University, and to hear from families about your experiences and concerns. I know some of you were not…
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12th Annual Loop for Luke

Saturday April 26th, 2025 Arrive 2PM with Departure at 2:15PM 8671 Open Meadow Way Columbia, MD 21045 Please join the Wright Family for either a 9 mile bike loop to Lake Elkhorn or a 2.5 mile walk or bike loop to Jackson Pond. Afterwards we’ll enjoy snacks and fellowship in our backyard. Please bring your…
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2024 Regional Conference

Our 2024 Regional Conference in Ontario, Canada was a great success!
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11th Annual Loop for Luke

Saturday April 20th, 2024 Arrive 2PM with Departure at 2:15PM 8671 Open Meadow Way Columbia, MD 21045 Please join the Wright Family for either a 9 mile bike Loop to Lake Elkhorn or a 3 mile walk Loop to Jackson Pond. Afterward we’ll enjoy snacks and fellowship in our backyard. Please bring your bike helmet…
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