Welcome Home to CSA
Thank you to the families, researchers and scientists that helped make The 2nd International Basic Science and Clinical Conference on Christianson Syndrome so SPECIAL!!
Our Mission Statement:
To advance the awareness and treatment of Christianson Syndrome through education and information, research, advocacy and support for individuals with Christianson Syndrome, their families, and other concerned parties.
Why was CSA created? The Christianson Syndrome Association is a non-profit organization founded by Debbie Nash and her family in August 2011 in honor of her son, Andrew. Andrew was diagnosed with Christianson Syndrome in August of 2010. Soon after receiving the diagnosis, the Nash family realized how very little was known about this newly found genetic disorder. From that point forward, it has been the goal of Debbie and her family to support the research into the cause and treatment for this disorder as well as raise awareness both nationally and internationally. Once diagnosed families need to be able to talk and network with other families to know that they are not alone. CSA was born out of Debbie’s desire to reach other families whose children are affected by CS and to unite them together as one family with the goal of raising awareness and to ultimately find a treatment to help our boys.
Christianson Syndrome Association
15201 Mason Road Ste 1000 #173
Cypress, TX 77433
2023 Loop for Luke
Stephen and Julie Wright did it again!! This event just keeps getting better. The continued support and love from their family and friends is second to none. Several of our CS families along with Dr Morrow and his outstanding research team were able to attend. As well we had people participating virtually. Dr Morrow was able to share some research, and families were able to converse with one another about what they were experiencing. The rain came, but that did not stop the walk. It was a great splash day enjoyed by all to show support for our CS families and to honor Luke XO See you next year J