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Saturday April 25th, 2020 at 11am
Sponsored by the Wrights

Coronaloop! The coronavirus COVID-19 pandemic has left nothing untouched, including our annual fundraiser. To that end, we will hold a virtual Loop. Please join our family in your own neighborhood (or socially distant acceptable alternative J) for a loop walk, run, or bike ride. Our goal is to walk 3 miles.

Contact Julie at jreichelt@yahoo.com to let us know if you’ll participate virtually and possibly share pics afterwards of your Loop.

If you choose to donate to CSA please make checks payable to Christianson Syndrome Association and send it to us by April 24th, or on our website (indicate Loop for Luke in comments section).  All proceeds go to CSA.

On June 8th 4^th the Hayden family hosted their 4th Annual CSA Walk. Ty is loved by so many and we are always so happy to see the love on his special day. The walk celebrates Ty and raises money and awareness for CSA. Their first walk was at local park. They invited a few close friends and family and raised a few hundred dollars. The next year the Haydens decided to host it at their house and have a walk and bbq. They've had over a hundred people each year since and raised over $1000 each year.

They spend the evening hanging out with friends and family so they can share stories about Ty and tell them why it is important to raise money for CSA. This year they honored the 5 boys we have lost. It is important to the Hayden family, and to all of us, that we keep their memory alive. We are all family and losing them was hard on all of us.

The Haydens raise money for CSA because they believe in the organization. Amy says that Dave and she used to be on the walk committee for Autism Speaks and left the organization even before Ty got his CS diagnosis because so much money was going toward salaries of their employees. They love that the money they raise goes to CS conferences and research. No one is getting paid a million dollar salary!!  Every little bit counts. Amy continues, some people raise way more money than them and she used to think maybe they shouldn’t do their event because the amount raised was so small compared to other events being held by other families. They have been to two conferences now and want to make sure they continue. They walk to raise money and awareness. They walk for all the families and would love for you to join them next year in Kansas or virtually.

This May Julie and Stephen Wright hosted the 1^st Regional CSA Family Gathering. On Friday May 17^th they kicked off the weekend with a “welcome” pizza dinner at their home. It was a great opportunity to meet new families and reconnect with old ones. Saturday May 18^th they had the 6^th Annual Loop for Luke to support Christianson Syndrome Association. It was a picture perfect day with both bike riders and walkers. Four CSA families joined them this year. In total, they had 56 walkers and riders from all over the USA. There was great conversation and laughter along the trail and everyone enjoyed the delicious post ride / walk luncheon. This time for fellowship and relaxation is always a lot of fun. We were thrilled that the event raised over $9,000.

Later in the evening the CSA families had the opportunity to meet again. Julie and Stephen planned a dinner gathering at their church. The group learned about the biology of CS in layman’s terms, were updated on ongoing research being conducted at Brown University, and had a round table discussion about specific challenges faced. It was a wonderful way to end a memorable and meaningful day. Stephen and Julie reported they were reminded that CSA’s strength is in the network that’s being created – instilling hope and connectedness among those involved.