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3rd Annual Loop for Luke

Loop for Luke

3rd Annual Loop for Luke

Saturday May 21st, 2016 – 11am

Lindale Middle School Parking Lot

415 Andover Road, Linthicum, MD 21090

Please join The Wright Family for a 11-mile family friendly bike ride.  The trail is paved and the pace will be easy going.  Bring your helmet and a picnic lunch to enjoy afterwards.  We’ll supply water and dessert.  Contact or (410)750-7128 if you can join us, or for more information.

If you choose to donate to CSA, please make checks payable to Christianson Syndrome Association and send it to us by May 21st, or online (indicate Loop for Luke in comments section), or bring it with you to the bike ride.


Get Your Heart Beating for CSA 2016

We want you to become a part of our 2016 Get Your Heart Beating event! Thanks to all our participants we raised $8,000.00 in 2015 and have a goal of $25,000.00 for 2016. All you need to do is sign up and pay your race fee online and then you go run, walk, swim or bike. You can even create a team of friends, family or co-workers. Everyone will sign up online and then you all can get your heart beating for CSA!

With a traditional run/walk or biking event you can arrive at a specific location on a specific date at a specific time. For our race, you start and complete your race on your course, take lots of pictures and videos and submit them to us for posting on our website and Facebook page. Our Twitter and Instagram is #CSAHeartbeat.

For those of you in the Houston, TX area, on Saturday May 7, 2016 the Nash family will be holding a Get Your Heart Beating Carnival at the Good Shepherd United Methodist Church in the Fairfield subdivision in Cypress. We invite all our Texas participants to come out, get your heart beating, and then enjoy a day of food, games and lots and lots of fun!

How to sign up – Click the Registration link below and it will take you right to Constant Contact where you can register. Then, get your group together May 1, through June 12, 2016. You can run, bike, swim or walk your own race. Email your photographs to with your name, your team’s name (if applicable), your race location, event and time. Just remember to have lots and lots of fun!

Register here for Get Your Heart Beating for CSA!

If you are unable to participate in our virtual event and just want to make a donation to CSA, please click on the donation button below and in the notes section of PayPal please note that this donation is in honor of Get Your Heart Beating for CSA!


2015 Loop for Luke Raises Over $6000 for CSA

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2015 Loop for Luke raises over $6,000.00 for CSA


In June of 2013 we had the opportunity to experience CSA first hand.  Our family attended the CSA Inaugural Conference and it was life changing for us.  “Loop for Luke” was born because we wanted to help raise awareness and further the mission of Christianson Syndrome Association.  Biking is an important part of our lives, Stephen and Luke ride a specialized tandem bike that allows us to ride as a family.  “Loop for Luke” was something we could do together, it was also something we could invite others to participate in as well.  On May 31, 2014 near Baltimore, MD we held our first  “Loop for Luke” and raised $2485.00.  Last month we held our 2nd Annual “Loop for Luke” and it was an even greater success.  Our family and friends were once again so generous and they helped us raise over $6,000.00 for CSA.  We are so blessed and we want everyone who participated and donated to know that “It meant so much to us to do something we love with those we love and in turn be able to give back to CSA”.  Thank you to all of you!


CSA Summer Conference 2015

[vc_row][vc_column][vc_column_text]Conference Logo“Believe in CSA” Join us at the Hyatt Place Hotel in The Woodlands, TX for our 2nd CSA Conference. July 30 – August 2, 2015.[/vc_column_text][vc_button title=”Click Here to Register” target=”_blank” color=”btn-primary” icon=”none” size=”btn-large” href=”″][/vc_column][/vc_row]


St. James holds Christianson Syndrome Day in support of Dante

[vc_row][vc_column][vc_single_image image=”100″ border_color=”grey” img_link_large=”yes” img_link_target=”_blank” img_size=”thumbnail”][vc_column_text]Recently Dante Coletta was the inspiration for a day to raise awareness of Christianson Syndrome at his school. Click here to read the article on the Hamilton-Wentworth Catholic School District’s website.[/vc_column_text][/vc_column][/vc_row]