Uncategorized

The 1st Annual Cooper’s Carnival: Christianson Syndrome Awareness Day was held on August 15, 2015 at the Harrogate City Park in Harrogate, TN. The event was hosted by Lincoln Memorial University-DeBusk College of Osteopathic Medicine student clubs in honor of Cooper Jackson, the only child diagnosed with Christianson Syndrome in the tri-state area. The purpose…

Once again we are very excited to thank the students and staff of Jowell Elementary school in Houston, TX.  The student council voted to once again hold a fund raiser to benefit CSA.  “Stickin Up 4 CSA” raised $1084.55.  Thank you to all who participated!!!!  

“GET YOUR HEART BEATING” was a huge success.  Thank to everyone around the world who supported us and got their hearts beating for CSA! We raised over $8,000.00!!   https://youtu.be/aUx0_Q1Z7Tg

CSA is proud to be a part of this incredible opportunity.  For more information view the following link. https://news.brown.edu/articles/2015/07/christianson  

2015 Loop for Luke raises over $6,000.00 for CSA   In June of 2013 we had the opportunity to experience CSA first hand.  Our family attended the CSA Inaugural Conference and it was life changing for us.  “Loop for Luke” was born because we wanted to help raise awareness and further the mission of Christianson…

In Conjunction with the Christianson Syndrome Association (CSA) Family Meeting Hyatt Place Hotel, The Woodlands, TX, July 30th – August 2nd 2015 Christianson syndrome (CS) is a newly recognized X-linked neurogenetic disorder caused by changes in the SLC9A6 gene encoding the endosomal Na+/H+ exchanger 6 (NHE6) protein. Confirmed Speakers Include: Special lecture by Huda Zoghbi,…

In accordance with the CSA mission statement regarding the advancement and awareness of Christianson Syndrome.  The Ontario Police College (academy) held several fundraisers from the months of January to March. CSA was presented to the Student Committee by Dante’s Dad, Enzo Coletta, an instructor at the college, as a charity option for the Basic Constable…

2nd Annual Loop for Luke Saturday May 2, 2015 Lindale Middle School Parking Lot 415 Andover Road Linthicum, MD 21090 Please join The Wright Family for a 11-mile family friendly bike ride.  The trail is paved and the pace will be easy going.  Bring your helmet and a picnic lunch to enjoy afterwards.  We’ll supply…

We want you to become a part of Get Your Heart Beating for CSA!  This virtual event is so easy.  All you need to do is click on the link below, it will take you to constant contact where we have set up a registration page just for this unique event.  All you need to…

[vc_row][vc_column][vc_single_image image=”100″ border_color=”grey” img_link_large=”yes” img_link_target=”_blank” img_size=”thumbnail”][vc_column_text]Recently Dante Coletta was the inspiration for a day to raise awareness of Christianson Syndrome at his school. Click here to read the article on the Hamilton-Wentworth Catholic School District’s website.[/vc_column_text][/vc_column][/vc_row]