This May Julie and Stephen Wright hosted the 1st Regional CSA Family Gathering. On Friday May 17th they kicked off the weekend with a “welcome” pizza dinner at their home. It was a great opportunity to meet new families and reconnect with old ones. Saturday May 18th they had the 6th Annual Loop for Luke to support Christianson Syndrome Association. It was a picture perfect day with both bike riders and walkers. Four CSA families joined them this year. In total, they had 56 walkers and riders from all over the USA. There was great conversation and laughter along the trail and everyone enjoyed the delicious post ride / walk luncheon. This time for fellowship and relaxation is always a lot of fun. We were thrilled that the event raised over $9,000.
Later in the evening the CSA families had the opportunity to meet again. Julie and Stephen planned a dinner gathering at their church. The group learned about the biology of CS in layman’s terms, were updated on ongoing research being conducted at Brown University, and had a round table discussion about specific challenges faced. It was a wonderful way to end a memorable and meaningful day. Stephen and Julie reported they were reminded that CSA’s strength is in the network that’s being created – instilling hope and connectedness among those involved.
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