Archive | Events

2023 Loop for Luke

Stephen and Julie Wright did it again!! This event just keeps getting better. The continued support and love from their family and friends is second to none. Several of our CS families along with Dr Morrow and his outstanding research team were able to attend. As well we had people participating virtually. Dr Morrow was able to share some research, and families were able to converse with one another about what they were experiencing. The rain came, but that did not stop the walk. It was a great splash day enjoyed by all to show support for our CS families and to honor Luke XO See you next year J

2023 Loop for Luke video thumbnail

10th Annual Loop for Luke

Saturday April 22nd, 2023
Arrive 2PM with Departure at 2:15PM

8671 Open Meadow Way
Columbia, MD 21045

Please join the Wright Family for either a 9 mile bike Loop to Lake Elkhorn or a 3 mile walk Loop to Jackson Pond. Afterward we’ll enjoy snacks and fellowship in our backyard. Please bring your bike helmet or tennis shoes and a blanket or chair for comfort.

RSVP to Julie at 443-812-8985 or to ensure we’ll have enough goodies for our Loopers. 🙂 Can’t be with us in person? Join us virtually and send your Loop pics/videos to to share with others. Finally, $10 Loop for Luke t-shirts are back by popular demand (and growing children)! If interested contact Julie by March 29th, 2023. If you choose to donate to CSA please make checks payable to Christianson Syndrome Association and send it to us by April 22nd or donate online by clicking on Make a Donation on the right sidebar (indicate Loop for Luke in the message line). All proceeds go to CSA.

Loop for Luke 2019
Loop for Luke 2019

7th Annual Loop for Luke

Loop for Luke

Saturday April 25th, 2020 at 11am
Sponsored by the Wrights

Coronaloop! The coronavirus COVID-19 pandemic has left nothing untouched, including our annual fundraiser. To that end, we will hold a virtual Loop. Please join our family in your own neighborhood (or socially distant acceptable alternative J) for a loop walk, run, or bike ride. Our goal is to walk 3 miles.

Contact Julie at to let us know if you’ll participate virtually and possibly share pics afterwards of your Loop.

If you choose to donate to CSA please make checks payable to Christianson Syndrome Association and send it to us by April 24th, or on our website (indicate Loop for Luke in comments section).  All proceeds go to CSA.

Loop for Luke 2019
Loop for Luke 2019

Grace Lofton Runs for CSA

Grace Loftin, 8 years old, made CSA her reason to run in the 2019 Typhoon Texas Kids Tri. She put her whole heart into it and was able to raise $1100.00 for our cause. Thank you Grace - we all appreciate your love and effort for our children. You are AMAZING!!

Grace and Andrew - Reason to Run


WyWy Warriors Walk 2019 Update

WyWyOn May 25, 2019, the Brewster family held their 3rd annual walk benefiting CSA. This was their second year to have the mayor declare May as CS Awareness month in Bryant, AR! The mayor and his wife attended the walk this year. The walk was at Mills Park, which is now an accessible park.  The Brewsters always have a laid-back walk, where people can come, have some snacks, walk as long as they want on the nature trail, and play on the playground or just hang out and talk.

Wywy group photo 2019


Ty and His Teams Report

On June 8th 4th the Hayden family hosted their 4th Annual CSA Walk. Ty is loved by so many and we are always so happy to see the love on his special day. The walk celebrates Ty and raises money and awareness for CSA. Their first walk was at local park. They invited a few close friends and family and raised a few hundred dollars. The next year the Haydens decided to host it at their house and have a walk and bbq. They've had over a hundred people each year since and raised over $1000 each year.

They spend the evening hanging out with friends and family so they can share stories about Ty and tell them why it is important to raise money for CSA. This year they honored the 5 boys we have lost. It is important to the Hayden family, and to all of us, that we keep their memory alive. We are all family and losing them was hard on all of us.

The Haydens raise money for CSA because they believe in the organization. Amy says that Dave and she used to be on the walk committee for Autism Speaks and left the organization even before Ty got his CS diagnosis because so much money was going toward salaries of their employees. They love that the money they raise goes to CS conferences and research. No one is getting paid a million dollar salary!!  Every little bit counts. Amy continues, some people raise way more money than them and she used to think maybe they shouldn’t do their event because the amount raised was so small compared to other events being held by other families. They have been to two conferences now and want to make sure they continue. They walk to raise money and awareness. They walk for all the families and would love for you to join them next year in Kansas or virtually.

Hayden family 2019 Ty's Team

6th Annual Loop for Luke

Loop for Luke

This May Julie and Stephen Wright hosted the 1st Regional CSA Family Gathering. On Friday May 17th they kicked off the weekend with a “welcome” pizza dinner at their home. It was a great opportunity to meet new families and reconnect with old ones. Saturday May 18th they had the 6th Annual Loop for Luke to support Christianson Syndrome Association. It was a picture perfect day with both bike riders and walkers. Four CSA families joined them this year. In total, they had 56 walkers and riders from all over the USA. There was great conversation and laughter along the trail and everyone enjoyed the delicious post ride / walk luncheon. This time for fellowship and relaxation is always a lot of fun. We were thrilled that the event raised over $9,000.

Later in the evening the CSA families had the opportunity to meet again. Julie and Stephen planned a dinner gathering at their church. The group learned about the biology of CS in layman’s terms, were updated on ongoing research being conducted at Brown University, and had a round table discussion about specific challenges faced. It was a wonderful way to end a memorable and meaningful day. Stephen and Julie reported they were reminded that CSA’s strength is in the network that’s being created – instilling hope and connectedness among those involved.

Loop for Luke 2019
Loop for Luke 2019

5th Annual Loop for Luke

Loop for Luke

5th Annual Loop for Luke

Saturday May 19th, 2018 – 11am

Lindale Middle School Parking Lot

415 Andover Road, Linthicum, MD 21090

Please join The Wright Family for EITHER the 11-mile family friendly bike ride OR walk a portion of the trail. Bring your helmet or your tennis shoes and a picnic lunch to enjoy afterwards. We’ll supply water and dessert.  Contact to RSVP or for more information.

If you choose to donate to CSA, please make checks payable to Christianson Syndrome Association and send it to us by May 18th, or online (indicate Loop for Luke in comments section), or bring it with you to the event. All proceeds go to CSA.

Click here for a downloadable flyer


Get Your Heart Beating for CSA 2018

Show your support and honor our amazing children and their families who are dealing with this rare genetic disorder. Registration opens February 14th through June 2018

What is a Virtual Race?
A virtual race is a self-motivated competition that is organized online where you complete a specific distance by running, walking or cycling on a date and time of your choosing, anywhere in the world. Virtual racing can be done on a treadmill at home or at the gym, at the beach, with friends, alone, in the evening, or at the break of dawn, it’s your choice.

Sign up on-line at $25 per participant (includes t-shirt)
Once you sign up you just need to get out and Get Your Heart Beating and raise awareness for CS. Take lots of pictures and videos and submit them to us for posting on our website and Facebook page.
Our Twitter and Instagram is #CSAHeartbeat.

Save the date:
Several non-virtual events have been planned in Arkansas, Kansas, Houston and Toronto.

Arkansas – May 19 Contact Olivia Brewster
Toronto –TBD Contact Wanda Coletta

Our Get Your Heart Beating Events in Cypress, TX and in Kansas on May 5, 2018 was a great success! Thanks for your support!

Show your support and honor our amazing children and their families who are dealing with this rare genetic disorder.

Get Your Heart Beating for CSA!

View #CSAHeartbeat Images on Instagram