WyWy Warriors Walk 2019 Update
On May 25, 2019, the Brewster family held their 3rd annual walk benefiting CSA. This was their second year to have the mayor declare May as CS Awareness month in Bryant, AR! The mayor and his wife attended the walk this year. The walk was at Mills Park, which is now an accessible park. The…
Read MoreTy and His Teams Report
On June 8th 4th the Hayden family hosted their 4th Annual CSA Walk. Ty is loved by so many and we are always so happy to see the love on his special day. The walk celebrates Ty and raises money and awareness for CSA. Their first walk was at local park. They invited a few…
Read More6th Annual Loop for Luke
This May Julie and Stephen Wright hosted the 1st Regional CSA Family Gathering. On Friday May 17th they kicked off the weekend with a “welcome” pizza dinner at their home. It was a great opportunity to meet new families and reconnect with old ones. Saturday May 18th they had the 6th Annual Loop for Luke…
Read More5th Annual Loop for Luke
5th Annual Loop for Luke Saturday May 19th, 2018 – 11am Lindale Middle School Parking Lot 415 Andover Road, Linthicum, MD 21090 Please join The Wright Family for EITHER the 11-mile family friendly bike ride OR walk a portion of the trail. Bring your helmet or your tennis shoes and a picnic lunch to enjoy…
Read MoreGet Your Heart Beating for CSA 2018
Show your support and honor our amazing children and their families who are dealing with this rare genetic disorder. Registration opens February 14th through June 2018 What is a Virtual Race? A virtual race is a self-motivated competition that is organized online where you complete a specific distance by running, walking or cycling on a…
Read MoreGet Your Heart Beating for CSA 2017
We want you to become a part of our 2017 Get Your Heart Beating event! Thanks to all our participants we raised $11,000.00 in 2016 and have a goal of $20,000.00 for 2017. All you need to do is sign up and pay your race fee online and then you go run, walk, swim or…
Read More3rd Annual Loop for Luke
3rd Annual Loop for Luke Saturday May 21st, 2016 – 11am Lindale Middle School Parking Lot 415 Andover Road, Linthicum, MD 21090 Please join The Wright Family for a 11-mile family friendly bike ride. The trail is paved and the pace will be easy going. Bring your helmet and a picnic lunch to enjoy afterwards.…
Read MoreGet Your Heart Beating for CSA 2016
We want you to become a part of our 2016 Get Your Heart Beating event! Thanks to all our participants we raised $8,000.00 in 2015 and have a goal of $25,000.00 for 2016. All you need to do is sign up and pay your race fee online and then you go run, walk, swim or…
Read MoreCooper’s Carnival Raises $4,143 for CSA
The 1st Annual Cooper’s Carnival: Christianson Syndrome Awareness Day was held on August 15, 2015 at the Harrogate City Park in Harrogate, TN. The event was hosted by Lincoln Memorial University-DeBusk College of Osteopathic Medicine student clubs in honor of Cooper Jackson, the only child diagnosed with Christianson Syndrome in the tri-state area. The purpose…
Read MoreStickin up 4 CSA
Once again we are very excited to thank the students and staff of Jowell Elementary school in Houston, TX. The student council voted to once again hold a fund raiser to benefit CSA. “Stickin Up 4 CSA” raised $1084.55. Thank you to all who participated!!!!
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