Christianson Syndrome Association

We want you to become a part of Get Your Heart Beating for CSA!  This virtual event is so easy.  All you need to do is click on the link below, it will take you to constant contact where we have set up a registration page just for this unique event.  All you need to do is sign up and pay your race fee online and then you go run, walk or bike.  You can even create a team of friends, family or co-workers.  Everyone will sign up online and then you all can get your heart beating for CSA!

With a traditional run/walk or biking event you can arrive at a specific location on a specific date at a specific time.  For our race, you start and complete your race on a course and once completed you record your time, take lots of pictures and submit them to us for posting on our website and Facebook page and we in turn will mail you a certificate thanking you for your participation.

How to sign up – Click the link below and it will take you right to constant contact to register.  Then in the  month of May 2015 you can run your own race.  Email your photographs to info@csa-cares.org with your name, your teams name (if applicable), your race location, event and time.  We work on the honor system so set a realistic goal for yourself and challenge your heart rate for CSA!

Register here for Get Your Heart Beating for CSA!

If you are unable to participate in our virtual event and just want to make a donation to CSA, please click on the donation button below and in the notes section of PayPal please note that this donation is in honor of Get Your Heart Beating for CSA!

[vc_row][vc_column][vc_single_image image=”100″ border_color=”grey” img_link_large=”yes” img_link_target=”_blank” img_size=”thumbnail”][vc_column_text]Recently Dante Coletta was the inspiration for a day to raise awareness of Christianson Syndrome at his school. Click here to read the article on the Hamilton-Wentworth Catholic School District’s website.[/vc_column_text][/vc_column][/vc_row]

Christianson syndrome (CS) is an X-linked neurodevelopmental disorder caused by deleterious mutations in SLC9A6. Affected families organized the inaugural Christianson Syndrome Association conference to advance CS knowledge and develop questions that may be prioritized in future research.

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