Stickin up 4 CSA

Once again we are very excited to thank the students and staff of Jowell Elementary school in Houston, TX.  The student council voted to once again hold a fund raiser to benefit CSA.  “Stickin Up 4 CSA” raised $1084.55.  Thank you to all who participated!!!!

 

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2015 Loop for Luke Raises Over $6000 for CSA

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2015 Loop for Luke raises over $6,000.00 for CSA

 

In June of 2013 we had the opportunity to experience CSA first hand.  Our family attended the CSA Inaugural Conference and it was life changing for us.  “Loop for Luke” was born because we wanted to help raise awareness and further the mission of Christianson Syndrome Association.  Biking is an important part of our lives, Stephen and Luke ride a specialized tandem bike that allows us to ride as a family.  “Loop for Luke” was something we could do together, it was also something we could invite others to participate in as well.  On May 31, 2014 near Baltimore, MD we held our first  “Loop for Luke” and raised $2485.00.  Last month we held our 2nd Annual “Loop for Luke” and it was an even greater success.  Our family and friends were once again so generous and they helped us raise over $6,000.00 for CSA.  We are so blessed and we want everyone who participated and donated to know that “It meant so much to us to do something we love with those we love and in turn be able to give back to CSA”.  Thank you to all of you!

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1st International Basic and Clinical Science Conference on Christianson Syndrome

In Conjunction with the Christianson Syndrome Association (CSA) Family Meeting
Hyatt Place Hotel, The Woodlands, TX, July 30th – August 2nd 2015

Christianson syndrome (CS) is a newly recognized X-linked neurogenetic disorder caused by changes in the SLC9A6 gene encoding the endosomal Na+/H+ exchanger 6 (NHE6) protein.

photo23Confirmed Speakers Include:

  • Special lecture by Huda Zoghbi, Baylor College of Medicine
  • Arnold Christianson, South African National Health Laboratory Service emeritus
  • Laurent Counillon, University of Nice
  • Robert Edwards, UC, San Francisco
  • Sofia Lizarraga, University of South Carolina
  • Anne McKinney, McGill University
  • Eric Morrow, Brown University
  • John Orlowski, McGill University
  • Annapurna Poduri, Boston Children’s Hospital
  • Rajini Rao, Johns Hopkins School of Medicine
  • Charles Schwartz, Greenwood Genetic Center
  • Jakub Sikora, Charles University – Prague
  • Petter Stromme, University of Oslo
  • Steven Walkley, Albert Einstein College of Medicine

Click Here to Register or for more information email ChristiansonSyndromeMeeting@gmail.com

There will be opportunity to present scientific abstracts as a talk or poster. Please submit your title and abstract (250 word limit) to ChristiansonSyndromeMeeting@gmail.com

Co-Organizers:

Eric M. Morrow MD, PhD
Associate Professor, Brown University and
Steven U. Walkley DVM, PhD
Professor, Albert Einstein College of Medicine

Generous Sponsorship Provided By:

The Company of Biologists and
National Institute of Neurological Disorders and Stroke

Click here for a printable flyer

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Ontario Police College Charity Fundraiser

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In accordance with the CSA mission statement regarding the advancement and awareness of Christianson Syndrome.  The Ontario Police College (academy) held several fundraisers from the months of January to March.

CSA was presented to the Student Committee by Dante’s Dad, Enzo Coletta, an instructor at the college, as a charity option for the Basic Constable Class of January to March 2015 and was chosen as their charity of choice.

Over the three months the cadets raised a total of $1300.00 through donations and various fundraising events.  The entire college was talking about Christianson Syndrome.

On April 4, 2015, Mom, Wanda with little Dante by her side was presented with a check for $1300.00 by Mr. Bruce Heridge, the Director of the Ontario Police College while the soon to be graduating police cadets held up their bracelets in support of CSA!

Thank you Ontario Police College Basic Constable Class of January to March 2015!

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Loop For Luke

2nd Annual Loop for Luke

Saturday May 2, 2015

Lindale Middle School Parking Lot

415 Andover Road Linthicum, MD 21090

Please join The Wright Family for a 11-mile family friendly bike ride.  The trail is paved and the pace will be easy going.  Bring your helmet and a picnic lunch to enjoy afterwards.  We’ll supply water and dessert.  Contact stephenwright41099@gmail.com or (410)750-7128 if you can join us, if you would like to purchase a $10.00 “Loop” shirt (order by April 15th – proceeds go to CSA), or for more information.

**If you choose to donate to CSA please make your checks payable to Christianson Syndrome Association (CSA) and send it to us by May 2nd, or you can bring it to the bike ride.

 

 

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Get Your Heart Beating for CSA!

We want you to become a part of Get Your Heart Beating for CSA!  This virtual event is so easy.  All you need to do is click on the link below, it will take you to constant contact where we have set up a registration page just for this unique event.  All you need to do is sign up and pay your race fee online and then you go run, walk or bike.  You can even create a team of friends, family or co-workers.  Everyone will sign up online and then you all can get your heart beating for CSA!

With a traditional run/walk or biking event you can arrive at a specific location on a specific date at a specific time.  For our race, you start and complete your race on a course and once completed you record your time, take lots of pictures and submit them to us for posting on our website and Facebook page and we in turn will mail you a certificate thanking you for your participation.

How to sign up – Click the link below and it will take you right to constant contact to register.  Then in the  month of May 2015 you can run your own race.  Email your photographs to info@csa-cares.org with your name, your teams name (if applicable), your race location, event and time.  We work on the honor system so set a realistic goal for yourself and challenge your heart rate for CSA!

 

Register here for Get Your Heart Beating for CSA!

If you are unable to participate in our virtual event and just want to make a donation to CSA, please click on the donation button below and in the notes section of PayPal please note that this donation is in honor of Get Your Heart Beating for CSA!





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CSA Summer Conference 2015

[vc_row][vc_column][vc_column_text]Conference Logo“Believe in CSA” Join us at the Hyatt Place Hotel in The Woodlands, TX for our 2nd CSA Conference. July 30 – August 2, 2015.[/vc_column_text][vc_button title=”Click Here to Register” target=”_blank” color=”btn-primary” icon=”none” size=”btn-large” href=”http://events.constantcontact.com/register/event?llr=55vjxbmab&oeidk=a07eaih0bbe6ff0fc21″][/vc_column][/vc_row]

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St. James holds Christianson Syndrome Day in support of Dante

[vc_row][vc_column][vc_single_image image=”100″ border_color=”grey” img_link_large=”yes” img_link_target=”_blank” img_size=”thumbnail”][vc_column_text]Recently Dante Coletta was the inspiration for a day to raise awareness of Christianson Syndrome at his school. Click here to read the article on the Hamilton-Wentworth Catholic School District’s website.[/vc_column_text][/vc_column][/vc_row]

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